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Keep up with SCDAA-MI news, articles and information from a variety of outlets on issues affecting sickle cell, and videos and webinars to keep you up-to-date about what's happening in the #sicklecell community. ​

SCDAA-MI OUT & ABOUT

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SCDAA-MI ANNOUNCES SAFE(R) INITIATIVE TO IMPROVE EMERGENCY SICKLE CELL CARE

Effort aims to assist medical community in proper treatment of long-misunderstood disease

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February 26, 2020                      Read more

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SAFE(R) provides medical professionals with quick access to an online portal at SCDAAMI.org/SickleCell911 that provides clinical practice guidelines for sickle cell established by the National Institutes of Health, sickle cell-specific opioid guidance from the Centers for Disease Control, as well as best practices and recommendations from the American Society of Hematology and other leading experts in sickle cell treatment.

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NHLBI Speaker

"Thank you National Heart, Lung, and Blood Institute (NHLBI) for having me alongside these devoted advocates as a panelist for the “What is a Meaningful Cure?” panel discussion hosted by Dr. Wanda Whitten-Shurney. #CureSCI #sicklecell

Thanks Teonna Woolford for the pic!! — with Velvet Brown-Watts, André Marcel Harris and Cassandra Trimnell at Hilton Washington DC/Rockville Hotel and Executive Meeting Center."

NEWS FROM AROUND THE COMMUNITY

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Toledo's Promedica Hospital has added an adult sickle cell clinic, the first of its kind in northwest Toledo. 
- WATCH & READ   

 

Get the clinic's info here

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Could gene therapy cure sickle cell anemia? - WATCH

FDA approves first targeted therapy to treat patients with painful complication of sickle cell disease - READ
FDA Approves Oxbryta™ (Voxelotor), the First Medicine Specifically Targeting the Root Cause of Sickle Cell Disease - READ
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Sickle Cell Disease Treatment Has Oklahoma Roots - READ

Sickle cell disease: Why is it hard to talk about our pain? BBC Stories
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Sickle cell disease: Why is it hard to talk about our pain? BBC Stories

Sickle cell disease is a serious and lifelong health condition that predominantly affects people from African or Caribbean backgrounds. Symptoms include bouts of pain, strokes, organ failure, and complications that can result in reduced life expectancy. Some consider it a 'silent illness' as those who have the condition rarely speak about it or the pain that they live with. We speak to 25 year-old Chris who lives with the disease and started his own initiative that aims to create conversation about the condition. Produced by: Kesewaa Browne Filmed and edited by: James Stewart Animation: Gerard Groves Commissioning Editor: Kimberley Rowell #sicklecell #sickle #bbc We are BBC Stories, a group of journalists making films, long and short, with the younger audience (18-24) in mind. The idea is to tackle issues which concern and impact this group of people. So think about anything from race and identity to mental health, money and much more.
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